Connie
2019 Story
I was initially diagnosed with stage 2b-3a breast cancer from the biopsy. This was due to size of tumor and regional lymph node involvement. The cancer was estrogen positive HER 2 negative. The initial treatment plan was 6 chemo treatments, mastectomy, followed by radiation. However, a radiologist saw a lymph node in my chest wall and was concerned with because of the shape. That led to a PET scan that showed Mets to 2 vertebrae and left hip girdle.
Now I am stage 4 and we have gone from treating for a cure to treating for disease management. I am on my 3rd chemo. I was unable to do Zometa due to osteonecrosis. I have had progression to 2 more vertebrae and the right hip girdle. Most recently I have mets to the brain. Only one lesion was treated with radiostatic radiation. I have been blessed that I haven’t had a difficult time with side effects and still only take Tylenol for pain.
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I have been in treatment since 2013. In 2012, I had cervical cancer and had a total Hysterectomy. I was misdiagnosed and told the lump in my breast was calcium and the size of a pea. In 2013, it was taken out. It was the size of a baseball - stage 3.
I was diagnosed with stage IV metastatic transitional cell collecting duct cancer (renal) in 2013. I have been forced to continue working for employers with adverse cultures and aspirations to my own as a result of the fear of being left without continued choice of treatment which comes with insurance only offered by group plans, and being able to seek treatment at the facilities of my choosing.
Life isn't easy by any means. I used to be a girl that would run constantly, have so much energy, but that has changed!
It's so strange how time can go so slowly and fly by at the same time. I got my metastatic breast cancer diagnosis in December of 2009, almost 12 years ago. I have had no evidence of disease for ten years.
The word metastatic first came into my vernacular June 18, 2013. Well actually, I was told at that moment I would be lucky if it wasn't at least stage two. A month later I found out after scans it was stage 4 from the very beginning.
My husband was diagnosed with colon cancer initially in 2019, had surgery in January 2020, went through chemo and was in remission. Then, when he had a routine CAT scan, they told us he had a spot in his liver. He had the PET scan and it showed stage 4 liver cancer.
For me, it has taken a team of amazing doctors, each with different specialties. Primary Physician (Internal Medicine) who detected my elevated PSA at 141.
In 2020, my warrior husband, Jerry Kester, was diagnosed with Small Cell Lung Cancer.
At the age of 28 in 2018, I was given the unthinkable news.