"I try and find one thing each day to be grateful for even though some days that’s so hard. The world is beautiful and I’m not ready to leave it yet!!"
I had been living live as normal as possible since my diagnosis of DCIS stage 3 in 2005. Scans were sparse as they had considered me cancer free after so long. Then in 2014, I hurt my hip at work, 8 months and 3 different diagnoses. I finally broke down and demanded a bone scan. The stage 4 news came in January, 2015, almost 10 years from my original cancer, wait no one said this could happen!! I had to tell my children once again that their mum has cancer and this time there was no cure.
I have bone mets in my hips, ribs, upper and lower spine. The prognosis was 3-5 years life expectancy!! Wow!! Shocked and emotional, I decided I needed to get things in order it almost seemed like a rush now, how had I got to this!!
I was put on Letrozole daily and Xgeva shots monthly my cancer was Er+ Hr+ her2+ at the time.
Over the next 4 years, my first grand child was born, beautiful Elizabeth, so every year we booked a villa in Florida for two weeks with all my children and grandchildren and we made memories.
In 2016 I saw my youngest son graduate from the US Army engineering program which he’s been in 2 years now, I am so proud!!
My January 2019 yearly scan showed progression to my liver. Letrozole was no longer working. Back again rushed in the fear and urgency to squeeze as much into life as I can. With the odds stacked against me, I fought on. Next, I had to wait 12 weeks for a liver biopsy!! 12 weeks is a long time in cancer land. The liver biopsy showed my cancer has mutated to HER2-, who knew that could happen, not me!!
It was decided we would go aggressive as I was fairly healthy and the plan was 12-18 weeks of Pacilotaxol. Before my treatment started I decided, “Well if I’m going to lose my hair, I’m going to raise some money doing it for charity.” We did a Facebook live and we shaved my head!! Raised £152!!!
I’m now half way through my treatment, it’s been a struggle to be honest. The fatigue is horrendous and week 8 I had to have a blood transfusion but wow what a difference that made. I feel like I can see this through to the end now. My next scan is due soon to see how I am doing, this one scares me more than any other scan and I’ve had so many!!
I try not to focus on death! I try and find one thing each day to be grateful for even though some days that’s so hard. The world is beautiful and I’m not ready to leave it yet!!
- North Carolina
- West Virginia
- New York
- New Jersey